Influencer Hannah Campbell Mourns the Loss of Her 10-Month-Old Daughter to Epidermolysis Bullosa
Social media personality Hannah Campbell has shared the devastating loss of her 10-month-old daughter, Elliana Rose, who passed away after a long battle with epidermolysis bullosa (EB) — a rare and painful genetic skin condition.
In a heartfelt Instagram post, Campbell wrote:
“She passed peacefully, wrapped in love. I don’t know what to do with myself today.”
She also thanked her followers:
“Thank you for loving her with us.”
What Is Epidermolysis Bullosa (EB)?
Epidermolysis bullosa, commonly referred to as EB, is a genetic disorder where the layers of the skin do not bind together properly, resulting in extreme blistering, even from minor friction or contact.
Babies born with severe forms of EB develop painful wounds on their hands, feet, face, and even internal organs like the mouth and esophagus. These children are often called “butterfly babies” because their skin is as delicate as a butterfly’s wing.
Campbell’s Journey With Elliana Rose on Social Media
Throughout Elliana’s life, Campbell bravely documented their family’s emotional journey on TikTok and Instagram, providing awareness about the daily challenges of living with EB. From NICU care to hospice support, she shared both the hardships and the joyful milestones.
Some of the treasured moments included:
- Celebrating Elliana’s 6-month birthday
- Watching her enjoy sibling laughter
- Singing karaoke as a family
- A magical visit to Disney World
Final Moments and Tribute
On March 30, Campbell posted a video showing Elliana peacefully drinking from a bottle. She captioned it:
“Ellie’s body is slowing down, and we’re staying by her side, giving her all our love.”
A few days later, she revealed that Elliana had not opened her eyes or eaten, and her body was growing weaker.
On April 7, Campbell confirmed her daughter’s passing and expressed her grief and determination:
“I’m heartbroken, and I’m angry. No child should have to endure what she did. EB stole her from us. Let’s fight for a cure so no other family has to feel this.”
A Call for Awareness and Research
Hannah Campbell’s transparency has touched millions, bringing national attention to epidermolysis bullosa and the urgent need for medical research and treatment funding. Her powerful message continues to inspire a community of supporters to raise awareness, support grieving families, and advocate for a cure.
